An assortment of vignettes

Max crammed a lot of living into seventeen short years. Here are a very few of the incidents we managed to capture in pictures.

  • Max earns his black belt

    After several years of hard work, and progressing through a myriad of colors, Max finally earns his black belt in tae kwon do.

  • Tree climbing

    In 2008, Max traveled to Los Angeles, California. No boy (or girl) can resist climbing a gnarly old tree. Max and sister, Nicole, had a great time clambering up this one.

  • Tucker's Rock

    In the fall of 2013, Max and I traveled to Stowe, Vermont to attend the (then) 2nd annual patient and family gathering for those touched by FHC. It was and continues to be sponsored by the Fibrolamellar Cancer Foundation. We are seen here touching “Tucker’s Rock.” Following in Tucker Davis’s footsteps, everyone who attended the gathering touched this rock for good luck, good karma, good vibes, a cure for FHC, a miracle, yes, we needed a miracle.

  • nursepenny

    Nurse Penny

    Max's wonderful nurse, Nurse Penny at St. Jude, took part in the second annual run and even got the t-shirt! Thank you, you wonderful lady. Words cannot express how thankful we are for the way you cared for Max.

  • Terri and Max.

    Terri, Max’s beloved “home health nurse” (we never used the word “hospice).

  • Story time was still fun.

    Max is being read “Good Night Moon” by Morgan Freeman.

  • Thumbs for for right now.

    Just hours before being told that Max had Fibrolamellar Hepatocellular Carcinoma.

  • OLPH Youth Group

    A photo collage made in Feb. 2012 of friends from OLPH.

  • Max and Lisa

    Lisa moved heaven and earth for Max.

  • Easter Sunday

    May 2014 with family.

  • Siblings

    With sister Nicole and brother Al / Paul.

  • Partners

    Max and Zach. Perpetually partners in crime and tomfoolery.

  • Prankster

    Max was quite a prankster. During one of his day-long stays at St. Jude, he designed various buttons, all depicting his oncologist’s face.

Some more memories and stories about Max

33 commentsPrayer Angels!

In October 2012, about a month after Max was diagnosed with FHC, he received a card with a Nebraska return address. We didn’t know anyone in Nebraska. When he opened the card he found a little stitched angel inside. The card wasn’t signed by any one individual, but by a “secret angel stitcher.” Day after day these cards continued to arrive in the mail from all over the United States. Each card contained a stitched angel. Some cards contained beautiful prayers; others contained words of encouragement. All were sweet, kind and thoughtful. So that Max would be able to appreciate the angels, I bought a map of the United States. When an angel arrived in the mail, we pinned it to the state from which it was mailed. We later discovered that there is an organization called the Secret Angel Stitchers. They have a website at www.secretangelstitchers.com. It was so heartwarming to know that so many people from so many different parts of the country were saying prayers, creating little angels, and thinking about my Maxie.

Max and Terase attend the 8th grade school dance.
Max and his 9th grade rugby team  A parent's poem.


Max spent many days and nights at St. Jude. Sometimes he was inpatient overnight, sometimes it was more than one night. Once he was wheelchair-bound he liked being pushed around the hospital. We would always start by visiting his nurses in AT (Assessment Triage). He wanted to see Ms. Virginia and Ms. LaTonya. Then we would go to the gift shop. After that, we would go to Starbucks and the cafeteria. One night after making our rounds Max took me to an auditorium that he had discovered because he wanted to play the piano. We went there many times.


More photos

At some point you may be faced with extraordinary costs to store pictures on your phone or camera. Our experience tells us to pay the toll, buy the extra memory. You can never have enough good memories, and you never know when that is all you have left.